They Would Cry If They Could — Help Children with Familial Dysautonomia

Familial Dysautonomia (FD) is a rare and heartbreaking genetic disorder that robs children of the ability to feel pain, regulate temperature, or even cry real tears. It disrupts the body’s automatic functions — swallowing, breathing, digesting, and responding to stress — turning ordinary moments into daily battles for survival. Yet through it all, children with FD show remarkable strength, laughter, and determination. Behind every child with FD stands a family fighting for comfort, care, and hope. With your support, FD-UK.org provides that vital lifeline — funding essential medical treatment, equipment, and travel for specialist care not available through the NHS.

“As a parent of someone who has FD, I am so grateful for the charity’s ongoing support, which is not supported by the NHS.  The charity supports literally anything from a private GP in an emergency , to paying for a piece of equipment. Thank you so much for being there, always.”                                                                                                                                                                                                                                        Rosalind Jacobs

The charity also supports pioneering research, helps train UK doctors and therapists, and brings world experts to share their knowledge so that every child receives the best possible care. Your generosity can make a real difference — helping a child to breathe more easily, grow stronger, and live longer. Every donation brings us one step closer to a future where no child suffers alone. Please give today — your compassion can change lives. Donations can be made securely via: https://donorbox.org/fd-uk-donations

Together, we can replace pain with comfort, fear with the sound of a child’s laughter